CJD FOUNDATION MIAMI FOUNDER CELE SARDO
Jun 15, 2009
Greetings CJD Family,
I want to let the old timers, and everyone know, that Cele Sardo, founder of the original CJD Foundation out of Florida, who pioneered support for CJD victims of all types here in the USA first, before the CJD Foundation INC at CWRU took it over, before CJD voice, or CJD watch. Cele passed away this morning about 4 AM. she was my friend, and as twisted as i may seem sometimes, she has always understood my anger. Joe told me that the family will bury Cele in the Kendall area of Miami later this week where Mr. Sardo, Joe's father is buried.Cele lost her husband Joe (Joseph's Father), to sporadic CJD around 1989. Mr. Sardo was 56 when he died from CJD. Cele and and her friend Mayra Lichter did a great job with the CJD Foundation when they had it, and Cele knew too well that the CJD surveillance was lacking here in the USA. Cele Sardo and Mayra Lichter Founded the CJD Foundation originally back in Miami, Florida around 1993, and what an organization of support is was. The Sardo Family has done a _great_ deal for research for CJD. Our thanks go out to them, along with our prayers for the family at this difficult time...
Two Women Against Mad Cow Disease November 1, 2001 Good Housekeeping by Lisa Belkin
http://www.organicconsumers.org/madcow/women110101.cfm
Proper sterilization may ward off deadly CJD transmission Healthcare Purchasing News , May, 2001
http://findarticles.com/p/articles/mi_m0BPC/is_5_25/ai_75644703/
CELE WAS A SOLDIER IN THE BATTLE TO FIND SUPPORT, TO FIND THE CAUSE, AND TO FIND A CURE FOR ALL FORMS OF CJD, OF ALL AGES. ...
with saddest regards,
i will miss my friend. ...terry
About Me
- Terry S. Singeltary Sr.
- My mother was murdered by what I call corporate and political homicide i.e. FOR PROFIT! she died from a rare phenotype of CJD i.e. the Heidenhain Variant of Creutzfeldt Jakob Disease i.e. sporadic, simply meaning from unknown route and source. I have simply been trying to validate her death DOD 12/14/97 with the truth. There is a route, and there is a source. There are many here in the USA. WE must make CJD and all human TSE, of all age groups 'reportable' Nationally and Internationally, with a written CJD questionnaire asking real questions pertaining to route and source of this agent. Friendly fire has the potential to play a huge role in the continued transmission of this agent via the medical, dental, and surgical arena. We must not flounder any longer. ...TSS